Monday, June 25, 2007

busy week, now back to school

Had our own sweet bonfire on solstice, then Friday to Revels at the Children's Museum with Michelle, Kathleen, Sofia, Erika, & Molly. Enjoyed ourselves. Blitz museum visit after the show. Admission is only $1 Fridays 5-9, but since there was less than an hour left, we got in free.

I was at an all-day course @ umass on Saturday, and then took the boys camping in New Hampshire Saturday night w/o Andey. Met up with our old Perkins infant-toddler crew & had a marvelous time. Dinner with friends last night also fabulous.

Lars was adorably extra-excited to get on the school bus this morning, having been off last week. Should have heard him squealing when he heard the bus arrive. I thought he was going to jump right out of his chair. He'll go to summer school now through July 27th.

He's been feeling well, generally quite happy. He's been pretty mellow & easy to take care of (on 2,500 mg/day of neurontin). Stomach has been quite a challenge, with lots of throwing up & spitting up, and very little food by mouth.

We're working on getting approval for some PCA (personal care assistant) hours & it's looking good. We got some one-time funding already through the department of public health & have been blessed to have a former intern & student of mine who wants to work with Lars. She's amazing with kids in general & has fallen under the spell of Sir Larsalot already in the 3 days she's been with him. He's quite smitten himself, so I'd say they're a great match. the rock star & his agent

In other wonderful news, check this out: a pediatrician who works with Lars' pediatrician is giving--yes, giving--Lars her family's 1930s piano. How amazing is that? Photos she sent:
Picture Lars on top, listening & feeling, Lars at the keyboard with one of us, making music... Picture me actually playing the piano because I finally have one to play. Endless possibilities.

1 comment:

Michelle said...

congrats to lars on returning to school. i am sure that they missed him as much as he missed them. i am so excited about the piano too! we will have some great times together with it.