Just got the best news of the millennium: Marlborough is sending Lars to the Perkins Preschool!!
I couldn't be happier!!!!!!!!!!!!!!
Wednesday, March 28, 2007
Tuesday, March 27, 2007
cautious optimism
Lars is feeling great, and has been for most of several days. A few bad times here & there, but in general excellent. He was so charming tonight it was almost intolerable. Such a beautiful thing.
Also seems we may have a chance to get him into Perkins. All fingers crossed for 10:00 a.m. Monday morning, when we have our "reconciliation" meeting with the team to deal with the rejected portions of the IEP...
Also seems we may have a chance to get him into Perkins. All fingers crossed for 10:00 a.m. Monday morning, when we have our "reconciliation" meeting with the team to deal with the rejected portions of the IEP...
quick update
Very short on time, so this will be brief. Lars has visited the preschool Friday & yesterday with us. We met with team leader & principal yesterday. Basically good meeting. Very strange. Principal apologized for not having TVI, acknowledged not having program in place for Lars. The door was finally opened, at the table, that this program may not be the right one for Lars.
We are supposed to schedule a resolution meeting for next week, although our advocate will be out of town until after April vacation. Appointment scheduled with lawyer next Friday, April 6th.
In the mean time, Lars is going to the preschool for his therapies, and perhaps for a little time visiting the classroom, and some more time getting to know his aide after the children are gone.
Principal floated the idea of Lars attending the collaborative in town until his program is in place at the preschool. Hm. Don't know what to think about that. Phone date with advocate tonight.
We are supposed to schedule a resolution meeting for next week, although our advocate will be out of town until after April vacation. Appointment scheduled with lawyer next Friday, April 6th.
In the mean time, Lars is going to the preschool for his therapies, and perhaps for a little time visiting the classroom, and some more time getting to know his aide after the children are gone.
Principal floated the idea of Lars attending the collaborative in town until his program is in place at the preschool. Hm. Don't know what to think about that. Phone date with advocate tonight.
Sunday, March 25, 2007
When Lars chewed open all 3 of his g-tube ports,
and emptied stomach contents all over himself & the hammock swing, Andey & I just said, "Of course that had to happen, to round out this evening." Before that we had poop up the back, down the leg, on Andey & the rocker & the floor & the bed. And we had water coming in the Fourth (4th) place in our "dry" basement.
I'm trying to get a letter ready for our meeting with the Marlborough school people tomorrow morning, and grade many many papers, and listen to many many student recordings, and prepare a presentation for a conference this coming weekend.
Turning school stuff over & over in my mind...thinking about the whole situation, many comments from friends, what we're going to say tomorrow.
Plan of action is tomorrow we meet with two bureaucrats to "talk about the IEP." Then we request a meeting directly with the sped director. Depending on the outcome of those two meetings, we likely file a formal complaint with DOE Program Quality Assurance because the district is out of compliance not having a TVI for Lars. Later tonight I'll post a draft of the letter on the ed blog.
Bringing Lars at the beginning of school tomorrow, but he won't be in the class without at least one of us (or a TVI). We'll bring him with us to the IEP meeting. Wish our advocate could come, but too short notice; she's busy.
Thrilled with the music therapist they've hired (Kathleen); will feel fine about the 1:1 aide after she gets training in how to deal with multiply impaired blind toddler; underwhelmed with the classroom teacher & OT; and downright concerned about speech & PT.
Lars has been feeling pretty good. Loves his new massage mat that he received from friends for his birthday. It was his buddy Suzie's birthday yesterday, so I put Deborah Henson Conant's birthday song on, and he did a birthday breakdance in her honor:
I'm trying to get a letter ready for our meeting with the Marlborough school people tomorrow morning, and grade many many papers, and listen to many many student recordings, and prepare a presentation for a conference this coming weekend.
Turning school stuff over & over in my mind...thinking about the whole situation, many comments from friends, what we're going to say tomorrow.
Plan of action is tomorrow we meet with two bureaucrats to "talk about the IEP." Then we request a meeting directly with the sped director. Depending on the outcome of those two meetings, we likely file a formal complaint with DOE Program Quality Assurance because the district is out of compliance not having a TVI for Lars. Later tonight I'll post a draft of the letter on the ed blog.
Bringing Lars at the beginning of school tomorrow, but he won't be in the class without at least one of us (or a TVI). We'll bring him with us to the IEP meeting. Wish our advocate could come, but too short notice; she's busy.
Thrilled with the music therapist they've hired (Kathleen); will feel fine about the 1:1 aide after she gets training in how to deal with multiply impaired blind toddler; underwhelmed with the classroom teacher & OT; and downright concerned about speech & PT.
Lars has been feeling pretty good. Loves his new massage mat that he received from friends for his birthday. It was his buddy Suzie's birthday yesterday, so I put Deborah Henson Conant's birthday song on, and he did a birthday breakdance in her honor:
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