Lars continues to be in serious pain, in cycles about five minutes long. With pain meds on board, he can sometimes relax through the valleys, but the peaks are up in the 6-10 range, on a 1-10 pain scale.
CCS docs following us are great. Dr. Thoughtful is CCS attending; presented this morning as very open, respectful & smart, thinking of Lars from many medical different angles. Asking good questions & listening to answers. So far he has our seal of approval.
Other good news: attending in neurology until Friday is Lars' epileptologist Dr. Betterthanthelastguy, who knows him well, is attached & invested in helping him, understands his baseline, and is also a good doc who knows how to work with us as full members of Lars' team.
Lars has been on IV fluids all night & is finally re-hydrated. Real tears are back. Currently prepping for a motility study. Not exactly sure what that will involve, but examining how food moves food through his stomach, small intestine & large intestine. Scheduling brain MRI and MRA, also looking at possibile metabolic concerns. Betterthanthelastguy said the question of depakote seemed unlikely because his episodic pain is unrelated to when he takes depakote, and because we would expect to have seen more gastritis and/or ulcer.
It's been wonderful to have us both here, taking turns. It's too much for one mom.
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