finally, a GI consult

Well, miracle of miracles, a GI fellow finally stopped by about a half an hour ago. He was able to answer some questions & explain the relationship between hypotonia (low tone, which Lars has), reflux & constipation. The new, more aggressive reflux med that they put him on takes like 48 hours to kick in & they started it Monday late afternoon, so we may be seeing results by this afternoon. He's napping now

(I know there are a lot of photos of him sleeping, but I usually don't have any hands free when he's awake!) before his feeding team appointment. We're going to watch him to see if he does the 5-9 p.m. scream like he did last night, and if he can eat & drink enough. If he really seems okay, we can go home at bedtime or so. If not, we'll stay here & they'll arrange for an endoscopy. They're also going to do a blood test for H. pylori, on the recommendation of the GI fellow.

I'm feeling much better than last night. Thanks for all the phone calls. We're hanging in.