brief update

Long weekend. Long night. Could have been way worse. My nightangel, Carylbeth, stayed until around 4 a.m. Wow, what a beautiful thing that was.

Lars slept 12:30 - 3:00 a.m., and then 3:30 - 4:07 a.m. We've had a long morning since then. He's on his third IV in the past 12 hours; we had a nice blood bath this morning when his IV cap popped off & squirted blood everywhere. But the amazing senior IV nurse who came to put a new one in was sooooooo skilled she made everyone else I've ever seen do an IV look like an amateur.

Lars has been npo since midnight. Any moment out of my arms and without movement this morning has been dreadfully bad, according to Sir Larsalot.

Lars had his Meckel's scan this morning, which involved injecting radioactive liquid into his veins and then nearly an hour and a half of lying flat on his back on a table under a huge camera, not being allowed to move, but with no sedation. They wrapped him up in a sheet like a burrito, then used dozens of wide pieces of tape to affix him to the table so he was unable to move. I sat in a tall chair next to his sweet head & tried to calm him.

He cried, I sang. We both dozed off a little in the middle somewhere, then he cried more & I sang more.

We don't have results yet. He's now blessedly napping.

They're making a plan for his spinal MRI, which hopefully will happen later today. Sounds like they may have anesthesia involved with that one because according to Nurse Iminchargeofmris, they don't do sedation on kids with reflux. Hmm, and we didn't talk about this on Friday because....?

I'll try to write more soon. Thanks for reading.