Well the bus didn't work out yesterday, so Andey missed an hour of morning work & brought Lars to school, I left work 5 hours early & picked him up. We were not about to let incompetence on someone else's part keep him from his first day of school.
It was fabulous, of course. He was happy & excited to be back. Tired, too. So thrilled about school he couldn't possibly nap yesterday, except 5 minutes, so he was exhausted & fell asleep early. He'll get used to this schedule again.
I attended closing circle with Lars & his buddy Eleanor, who is very happily now in his class. 100% sweet & adorable.
And the bus actually showed up this morning, albeit 20 minutes after it came last year. I'll be curious to hear whether they made it in time. Seemed like I spent basically all of yesterday on the phone in various states of irritation and irateness; as of yesterday afternoon @ 2:00 they still claimed they had no idea Lars got out @ 12:30, different from the other two kids that go from Marlborough to Perkins, who get out @ 2:30.
Will he get picked up @ 12:30 today? Stay tuned...
Wednesdays this semester I drive directly from work to my class at umass boston & won't get home 'til probably 11. Thursday morning 4:45 will come early, methinks. Kills me not to see the boys for 24 hours like that. Joa's asleep in the morning, so I won't see him from Tuesday night until Thursday afternoon :-(
Wednesday, September 05, 2007
Monday, September 03, 2007
school tomorrow!
Finally it's time for Lars to go back to school. He says he's been waiting for a really long time ;-)
Of course I don't know how he's getting there.
I've called this new bus company every day since I got the postcard. I did speak to a person again today & she promised again that the driver would be in touch with me by the end of the day. At 6:00 I called again to say again that no one has called me again.
I don't know what time they're coming.
I don't know if he's riding in his car seat or in his wheel chair.
If he's supposed to be riding in the wheel chair, then how does the tie down thing work, because I've never used them.
And I'm supposed to put my 3-year-old onto a bus with someone I've never met, who can't manage to return daily phone calls to her boss?
Whose boss promises repeatedly that she'll call me, but doesn't?
Andey has to work tonight, so there's a good chance she won't be here in the morning.
She's on call until 8:00 a.m.
Joa's staying overnight with Gannon because SVS doesn't start for another week.
I'm supposed to leave for work at 7:00 tomorrow.
Lars used to get on the bus @ 6:50.
Don't know if the bus is going to work, but come hell or high water I'm getting him to Perkins tomorrow.
On a better note, we had a grand time at the bed races
& then the parade with Patty, Abby, Emma, Gannon & Joa today. Sirens, bagpipes, marching bands, jazz bands, Inca Son, horses, retro bands, the spray bottle of water & lots of giggles. It was grand. And looong!
Of course I don't know how he's getting there.
I've called this new bus company every day since I got the postcard. I did speak to a person again today & she promised again that the driver would be in touch with me by the end of the day. At 6:00 I called again to say again that no one has called me again.
I don't know what time they're coming.
I don't know if he's riding in his car seat or in his wheel chair.
If he's supposed to be riding in the wheel chair, then how does the tie down thing work, because I've never used them.
And I'm supposed to put my 3-year-old onto a bus with someone I've never met, who can't manage to return daily phone calls to her boss?
Whose boss promises repeatedly that she'll call me, but doesn't?
Andey has to work tonight, so there's a good chance she won't be here in the morning.
She's on call until 8:00 a.m.
Joa's staying overnight with Gannon because SVS doesn't start for another week.
I'm supposed to leave for work at 7:00 tomorrow.
Lars used to get on the bus @ 6:50.
Don't know if the bus is going to work, but come hell or high water I'm getting him to Perkins tomorrow.
On a better note, we had a grand time at the bed races
& then the parade with Patty, Abby, Emma, Gannon & Joa today. Sirens, bagpipes, marching bands, jazz bands, Inca Son, horses, retro bands, the spray bottle of water & lots of giggles. It was grand. And looong!
Sunday, September 02, 2007
who did what?
I want to know who did what to this judge in Iowa... And I quote:
"DES MOINES (Reuters) - Gay couples lined up before dawn on Friday to apply for marriage licenses until an Iowa judge, who set off the rush to the altar by scuttling the state's law against same-sex marriage, put a halt to their bliss.
"Less than 24 hours after starting the marriage stampede, Judge Robert Hanson of the Polk County District Court issued a stay to his own ruling that had said Iowa's law restricting marriage to a man and a woman was unconstitutional.
"On Friday Hanson ordered that no more marriage licenses be issued to gay couples at the request of a county prosecutor who wanted a halt until Iowa's Supreme Court can rule on the prosecutor's appeal.
"But two Iowa State University students, Sean Fritz, 24, and Tim McQuillan, 21, beat the judge's stay and got their license, with a waiver bypassing the usual three-day waiting period.
"Then they rushed off and found a Unitarian minister to unite them in a brief ceremony in the front yard of his Des Moines home."
The rest is here.
"DES MOINES (Reuters) - Gay couples lined up before dawn on Friday to apply for marriage licenses until an Iowa judge, who set off the rush to the altar by scuttling the state's law against same-sex marriage, put a halt to their bliss.
"Less than 24 hours after starting the marriage stampede, Judge Robert Hanson of the Polk County District Court issued a stay to his own ruling that had said Iowa's law restricting marriage to a man and a woman was unconstitutional.
"On Friday Hanson ordered that no more marriage licenses be issued to gay couples at the request of a county prosecutor who wanted a halt until Iowa's Supreme Court can rule on the prosecutor's appeal.
"But two Iowa State University students, Sean Fritz, 24, and Tim McQuillan, 21, beat the judge's stay and got their license, with a waiver bypassing the usual three-day waiting period.
"Then they rushed off and found a Unitarian minister to unite them in a brief ceremony in the front yard of his Des Moines home."
The rest is here.
wow
One of the best concerts I've been to in my life & certainly the most successful with both boys. Outrageously fabulous & phenomenal from start to finish, Cape Breton fiddler Natalie MacMaster is a musical virtuoso & a stunningly physically expressive human being. Joa, Lars & I LOVED every minute. While Joa wore himself out dancing through the concert & fell asleep on the way home, Lars was still dancin' & hootin' & laughin' at midnight. Soooo many thanks to Lisa & John & Griffin for taking us. 
Saturday, September 01, 2007
more farm time
Lars @ Davis' Farmland yesterday & today. Good use out of that season pass. Yesterday we went with Joa & Gannon & met friends there. Today Michelle brought him. Highlights from yesterday: hanging out with Sophie, Isabelle, Catherine, & their moms; pony ride & hayride; 2-day-old baby goats; petting the calf; listening to the donkey, peacock, goose, chickens, & rooster; trusty bumpy blanket & pink strap; and playing in the water, including frequently sprinkled water to cool off Mr. Lars-of-no-sweat. Not so fun: getting overheated while waiting to get in.
Lowell tonight to see Natalie MacMaster play an outdoor concert. Joa's birthday gift from Lisa & John; Lars & I lucky enough to tag along. Should be great; 7:30, so not too hot. Lars couldn't do an outdoor afternoon concert, even in this lovely weather.
Just found out the folks who were taking Lars to Perkins on the school bus have lost the contract after 5 years & someone else is supposed to be taking him, starting this Tuesday morning at 6:50. We've never met nor heard from them. Hmm. At least no tubing to chew open on the road this year. The mic-key is working great. We love it.
Lowell tonight to see Natalie MacMaster play an outdoor concert. Joa's birthday gift from Lisa & John; Lars & I lucky enough to tag along. Should be great; 7:30, so not too hot. Lars couldn't do an outdoor afternoon concert, even in this lovely weather.
Just found out the folks who were taking Lars to Perkins on the school bus have lost the contract after 5 years & someone else is supposed to be taking him, starting this Tuesday morning at 6:50. We've never met nor heard from them. Hmm. At least no tubing to chew open on the road this year. The mic-key is working great. We love it.
Thursday, August 30, 2007
Saturday, August 25, 2007
well...almost
Soon after I posted yesterday Lars started to get upset. He screamed much of the rest of the afternoon & evening. Seemed to be in pain. Makes sense--they really have to yank the peg out & it had to be painful. There's a piece on the inside of the stomach keeping it from falling out usually (if you want to see what it looks like on the inside of the stomach, click here.) They literally wrap the outside tubing around their fist & pull it through. With no anesthetic. Ouch.So anyway, we gave him some nice meds last night & lil'man is happy & pain-free this morning. Here's Larsy with his new mic-key button (that's gauze under it):
The red on his skin is from the tape and duoderm we used to have to have all over his belly. This is mic-key hooked up for feeding: 
The old peg used to have to go straight in; this one is way flatter against his belly so he doesn't mess with it as much, so it theoretically won't get as much granulation tissue & won't be as painful. 
The evening's meds & tubes.
Friday, August 24, 2007
Thursday, August 23, 2007
tomorrow is mic-key day
Lars' procedure is tomorrow at 12:30; we have to be there by 11:45. If all goes well we'll be in & out (it's in a surgical area in case something goes wrong) with a brand new button & no more foot of tube hanging out of the belly for Lars to chew on, pop open, spill stomach contents all over from...these are near daily events. Also hoping the mic-key causes less skin breakdown. So grateful we've had the tube these past six months. Will let you know how it went.
Monday, August 20, 2007
Davis' farmland
Lars has a Davis' Farmland membership again this year & enjoys his trips very much. Feeling, petting, hugging, being nibbled by extremely friendly baby goats, sheep, calves... Way fun. Llamas, alpacas, chickens, donkeys, cows, pigs, turkeys, peacocks...lots of animals to listen to, a fabulous hayride with many tactile elements (hay, horns, horseshoes), and riding horses. The only place he's ever ridden a horse & loved it every time. He laid his face right down on the neck of the pony and laughed hysterically the entire time.
There's also a huge play area and a water/spray park which is great for Joa & company...Lars has fun catching the mist-filled breezes from the spray, but he's much more of a still water guy.
There's also a huge play area and a water/spray park which is great for Joa & company...Lars has fun catching the mist-filled breezes from the spray, but he's much more of a still water guy.
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