cyclone

Dr. Cyclone blew through. Put my mind to rest regarding encephalopathy as a result of depakote/valproic acid. Apparently it would usually set in over the course of days, not months, & would represent a much quicker degeneration than we've seen.

Waiting to start Lars on neurontin until CP (cerebral palsy) docs can see him about his relatively dramatic increase in spasticity & klonus (legs, ankles, & feet). Outpatient CP appointment is in a month, but trying to get him seen in-patient. Cyclone thinks CP may want to start a med that doesn't mix well with neurontin.

Holding off on eeg because want to see it during a neural pain episode & we're not having any.

Not sure if we get to go home today because of his tough night. Decision's been postponed until afternoon.

Takes 6 months for g-tube site to heal & form a track. Then it's an outpatient procedure to exchange it for a mickey button, which will be much less obnoxious. Until August we have a lot of tubing & need to wear loose clothes because the tube wants to be sticking in as straight as possible.