Lars had a basically fantastic weekend. Played & explored, open to new people, interactive & charming, sweet & happy... A bit of a fuss Saturday afternoon & last night was rough, but otherwise he's been feeling great. Couldn't ask for more. Decreased his vigabatrin on Friday instead of Wednesday, so expected a rough weekend & got the opposite. Perhaps a decrease every 9 or 10 days works better than weekly?
Or perhaps fussing was really about the wrong school placement & the toll it took. Tuesday was his only significant visit at town preschool last week. Slept great Monday night, ate well & was in a perfect, alert mood when I took him in Tuesday. Within moments of entering the classroom, he started a mighty fuss & within 20 minutes was sound asleep. I guess when your feet can't take you out the door, that's the other way to get out of an uncomfortable situation.
Perkins visits scheduled next week; Tuesday at our house, and he'll go in Thursday. If if if everything goes well, as expected, maybe maybe maybe he'll start school on Beltane. I love Beltane; what a great day to begin.
Lars is eating more; yesterday he skipped 2 of 3 g-tube feeds. Friday I took him to Children's for a replacement g-tube port; chewed it up one too many times. Weighed in at 37 1/2 pounds, which is great. (Had been at 35 & dropped to 30.) Visited CBT & her sweet dogs. Lars absolutely loved Oebe-sue. Snickers, too, but Oebe-sue made her presence very known & felt; Lars was belly laughing for half an hour.
Wish I could have videotaped him brushing his teeth last night. About the sweetest thing I've seen.
Went to friend Tessa's birthday party yesterday. Had a great time; only thing that upset him was feeling the hands of a 4-month-old. Don't think he's felt hands smaller than his before; he was quite upset & shook by the experience. Somehow it was just wrong.
Speaking of wrong, several of you have (correctly, I think) suggested that part of what's going on with Lars is that he's 3. Since 2001 (when Joa was 3), I've insisted 3 is significantly more difficult than 2. Some things ("Nothing is right because it's not supposed to be unless whatever is exactly RIGHT" and "He thinks he gets to tantrum now that he's 3") we do right on schedule. I can handle that. Hey, after this weekend I'm cocky enough to think I can handle all sorts of things. Something so wonderful about having several days and nights through which I feel entirely adequate to meet all of Lars' needs. Ah, relish, relish.
AND...we got to go hear Bobby McFerrin at Symphony Hall Saturday night. Talk about "Music washes away from the soul the dust of everyday life" (Art Blakely)... Wow.
Monday, April 16, 2007
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