Larsman started feeling badly again late yesterday afternoon, and through the evening he was screaming off & on. He was able to move his bowels just before 11 p.m., felt better, smiled & fell asleep jabbering happily. This morning he started crying almost the moment he woke up & has continued intermittent painful cries all morning. It seems like reflux, where last night seemed like constipation.
This is the cycle the docs eventually settled on at Children's: constipation & reflux due to low tone (which is a neurological issue). We thought we had it under control with the addition of prilosec for reflux & senna for the motility end of constipation. Apparently this isn't enough to keep him out of pain, though. Is he backed up again?
Went to PT to see Alice this morning & cried a lot. We have an appointment with urgent care at our local pediatrician (although our doc is out because of the holiday) at 11:30. The nice nurse who called us back said, "Oh, I'm afraid they'll just tell you to go to the ER again."
I tried to find out the results of Lars' H.pylori test. The nurse on 8 West was able to tell me that the results were complete, but not what they were. I have twice paged the attending doc in GI at Children's in the last hour & a half, but so far no call back.
Andey reports from the field that Lars has fallen asleep & they're going to nap in the van until the 11:30 appointment.
Here's hoping he's at least having sweet dreams-
1:30 p.m. update: All the docs say is basically, "Too bad, so sad, I guess you have a kid in pain to deal with. It's not serious if it stops sometimes, it's not serious if he can go to sleep. Have you tried pepto bismal?"
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