Saturday, June 09, 2007

cheerios just now

Great week at school. Here are the beginnings of his communication book entries for the week (this is a book that travels between school staff & moms every day; a voice output switch also travels with recorded daily news that Lars can push to play/say):

Monday: "Lars was VERY happy today."
Tuesday: "VERY HAPPY all day."
Wednesday: "Lars was a little sad this morning, but perked up by snack time." [9 a.m.]
Thursday: (entry was all about the AFO's he's outgrowing)
Friday: "Lars was very happy & giggly. We had a great field trip [to Drumlin Farm]. Made butter by shaking a jar & tasted it, touched a feather & egg in the chicken coop, & felt wool in the sheep barn."

Planning to go to pride today, but 90% chance of rain, including thunderstorms...hmmm- I'd surely do it without kids, but with? We'll see.

Tuesday, June 05, 2007

no news=good news

Lars is doing really well, in general. Been giggling and laughing a lot, really enjoying himself. People ask if we gave him a happy pill.

Some trouble with increased spit up, throw up & reflux; some trouble with possible increased seizure activity. Got a depakote level & doc wants to up the dose a bit, so hopefully that will take care of it. He's grown considerably, so it makes sense that it's time for an increase.

End of spring & beginning of summer semester at Lesley, teaching 2 classes in each, plus the end of the year at Mercy Centre, plus starting the summer grad course that I'm taking at UMass--have, in combination, been completely overwhelming for me. The first three days of teaching summer intensives have already happened. Whew!

Friday, May 25, 2007

hot n tired


n grumpy... Lars' school bus got in an accident on the way to school this morning.

He's safe & home now. All I know is it was on route 20 in Weston, the EMTs came to the scene & checked him out, decided he was fine & didn't need to be transported to the ER, and another bus from the same company (Shuttle Bug) came & picked him up & brought him to school.

His teacher called when he finally arrived at school & said he was fine except for an abrasion on his neck where the car seat strap rubbed. They didn't take him on the class field trip, not wanting to put him back into a vehicle again so soon. He was apparently okay at school except for an angry half-hour in the late morning, perhaps after getting hot outside (For those of you "from away," it's 97 degrees here today. Our five minutes of spring have aparently elapsed already. Time flies.) I'd say he was probably pretty ticked off about being woken up & scared in the accident, missing circle time, which he loves dearly, missing the field trip & his peers, and about the whole hullabaloo in general.

I want to know more about exactly what happened so I can talk with him about his experience. I'm assuming the bus company will make contact with us this afternoon. If I were them, I certainly would call me.

5:15 update: Well, the bus company didn't call, so I called them. Can you say, "tailgating?' Can you say, "not paying close attention"? Lars' driver rear-ended a truck.

Story is truck sped up, Lars' driver sped up. Truck braked & driver "didn't catch it" & rear-ended the truck.

I spoke with one of the bus company's owners. She wasn't at the scene (assured me this is their first accident since 2004...), but reported that Lars waited in the van until the police and EMT's came, then after they cleared him to go to school, he had to wait another 45 minutes on the van for a second van to come. The police helped transfer the three kids to a different van & they went to school. She had no information about how long he cried, how the other two kids were, etc.

In order to do what’s required of me, I must ignore what I know about how vulnerable my children’s skin, bones & organs are when being hurled down the road enclosed in a metal box.

another good week

Lars has been having a good week at school. He has perhaps been a little more...himself lately. A little less all-good-all-the-time, and a little more up & down, which is Lars. Last week he had his first big neurological pain day at school, this week he had one rather weepy day & another when he wanted to be held all the time. That's my guy, after the honeymoon. He's still thrilled to go every morning & happy to tell us about it when he comes home again. Not to mention cute as a button.

He was having a lot of gagging, reflux, spitting up, and throwing up for a couple weeks, and it seems to have subsided. No idea why it came or went. Stomach bug? He totally didn't present as sick. A mystery.

I am more buried in work than I have been all year & am coming up on a weekend when Andey is working extra. If anyone knows of someone who's available parts of Sat, Sun, Mon, or Tue to hire for childcare (I'd be here but working in the house), please please let me know. I'm more than a little worried at this point. Phone is five oh eight, three oh three, oh five four five.

Hope everyone has a great long weekend.

Monday, May 21, 2007

Sunday, May 20, 2007

the week in photos


Rockin' & rollin' was popular this week (throwing himself as hard as possible forward & back while seated).



The tongue was also a big hit this week. I think this is the 4th time in his life that Lars has re-discovered his tongue. Each time it's amazing and wonderful. So sweet.

Monday, May 14, 2007

whew, back to school


Another bit of a rough weekend, especially Saturday when I took Lars to Davis' Farmland to have a sweet, wonderful toddler time romping with cute endangered farm animals & playing on cute playground equipment. Not. Screamed bloody murder. So lovely to receive those what-kind-of-a-terrible-parent-would-make-her-kid-scream-like-that-&-not-be-able-to-stop-it-? looks.

Seems he's upset with us for not taking him to school over the weekend. Sunday I spent a good half-hour saying in different ways, "one more night of sleep, then back to school," and all at once understanding seemed to come over him, he was able to stop complaining & enjoy the rest of the day. I could be projecting, but this is really what it seemed like happened.

We'll work on it, extemporizing on 'stay home days,' 'school days,' & 'x more nighttime sleeps until the next school' day themes. It'll probably click in around the end of July when we're facing five weeks of no school. Yelp.

Make no mistake that this is an amazing & fabulous problem to have & I'm completely intoxicated by its very existence.

Hoping Larsy got to go swimmin' today at school; last week he slept through it 'cause he'd had a terrible night, but last night was great, so fingers are crossed.

Sunday, May 13, 2007

standing today 1:00 Framingham green


From standing women dot org, a fantastic way to spend 5 minutes of Mother's Day. You can stand anywhere, joining women across the globe and back in history. Mother's Day is no hallmark holiday, it was originally started after the Civil War, as a protest to the carnage of that war, by women who had lost their sons. Here is the original Mother's Day Proclamation from Julia Ward Howe, 1870:
......................................

"Arise, then, women of this day! Arise all women who have hearts, whether our baptism be that of water or of fears!

"Say firmly: 'We will not have great questions decided by irrelevant agencies. Our husbands shall not come to us, reeking with carnage, for caresses and applause. Our sons shall not be taken from us to unlearn all that we have been able to teach them of charity, mercy and patience.

"We women of one country will be too tender of those of another country to allow our sons to be trained to injure theirs. From the bosom of the devastated earth a voice goes up with our own. It says "Disarm, Disarm! The sword of murder is not the balance of justice.'

"Blood does not wipe our dishonor nor violence indicate possession. As men have often forsaken the plow and the anvil at the summons of war, let women now leave all that may be left of home for a great and earnest day of counsel. Let them meet first, as women, to bewail and commemorate the dead.

"Let them then solemnly take counsel with each other as to the means whereby the great human family can live in peace, each bearing after their own time the sacred impress, not of Caesar, but of God.

"In the name of womanhood and of humanity, I earnestly ask that a general congress of women without limit of nationality may be appointed and held at some place deemed most convenient and at the earliest period consistent with its objects, to promote the alliance of the different nationalities, the amicable settlement of international questions, the great and general interests of peace."

Julia Ward Howe
Boston
1870
......................................

And more mothers' day history from our dear West Virginian friend, Carylbeth:

Did you know that the national recognition of Mother's Day happened due to the efforts of a WV woman?
Anna Jarvis held a ceremony in 1907 in Grafton, West Virginia, to honor her mother, who had died two years earlier. Jarvis' mother had tried to establish Mother's Friendship Days as a way of dealing with the aftermath of the Civil War. Anna Jarvis began a campaign to create a national holiday honoring mothers. She and her supporters wrote to ministers, businessmen and politicians, and they were successful in their efforts.

In 1910, West Virginia became the first state to recognize the new holiday, and the nation followed in 1914 when President Wilson declared the second Sunday in May to be Mother's Day. Jarvis used white carnations as a symbol for mothers, because carnations represented sweetness, purity and the endurance of mother love. (Today, white carnations represent a mother who has died, while red carnations represent a living mother.)

Unfortunately, Jarvis became bitter over the commercialization of the holiday. She filed a lawsuit to stop a 1923 Mother's Day event and was even arrested for disturbing the peace at a mother's convention where white carnations were being sold. Jarvis never married and never had children. She died in 1948.

Wednesday, May 09, 2007

catch up...







Howdy... I really wasn't feeling well & have been buried in work & just couldn't bring myself to stay awake to write the past week.

The long & short of it is we're thrilled pink & purple, up & down silly with Lars' placement, the amazing people he's working with, how incredibly happy & excited about school he is, the clarity with which he is telling us that this is exactly the right program for him...we just can't say enough good things. The progress & gains he made in just the first week, for heaven's sake. Stunning. He's so ready to be there & so ready to learn. Gush gush gush.

We're even thrilled with the transportation, which started this week: he's mostly sleeping all the way there & back, just as we had hoped he would, arriving rested & ready to rock n roll. And it's our neighbor transporting him.

Wednesday, May 02, 2007

fantastic first day

Lars had an unbelievably great first day of school yesterday!

Details and pictures to follow soon.

(Mama's been sick, or there would be many more details already...ah well.)