so much going on

Sorry for the lack of news--it's not for a lack of news, that's for sure. Managed to get the ash street house on the market--no small feat--and sold, twice. First buyers backed out after I signed an apartment lease & paid deposit & rent, but the very next day after I put the house back on the market, I had two more offers. Ended up selling to friends, so that's wonderful. It was a tense 24 hours realizing I was legally responsible for 2 houses & an apartment.

Will try to post more soon. Here's a sweet pic from this weekend at Michele's. Larsy decided that in her arms was the best place to go to sleep, and off he went....zzzzzzzz.....

star of stage and screen

Some of you may recall last year's fantastic Perkins preschool play in which Lars played one of the 3 little pigs. Well, this year, he got to be the 4th billy goat in the Three Billy Goats Gruff: the musical. Fantastic, the kids & staff were just great, and the music was perfect. Michele & I had a wonderful time attending the performance. And to think Lars almost missed it because he's had the stomach flu recently. In spite of missing dress rehearsal, they let him perform in the show anyway. Whew.

Larsy even had a "speaking" part, which he performed brilliantly by hitting his step-by-step switch, a voice output device with a recorded message that plays back when you push it.

memorial day weekend & the kayaks came out

I was in Nebraska most of the weekend at the funeral of a dear friend and mentor, but we managed to find kayaking time at Michele's pond after all. What a beautiful weekend it was, though bittersweet.

Mothers' Day

At church & at the Garden in the Woods. Lovely day!

yipee

So happy to have outdoor hammock swing & warm weather back.

catchin' up

Okay, I've undergone some serious harassment from Little Lars Blog fans for how remiss I've been in the update department. My apologies. Lots & lots going on here. I'm going to start catching up with some photos from tonight of Lars sportin' his new haircut. Don't think I'll buzz it again, but it's fun to see him looking so big boy-like. I miss his blonde curls. They'll grow back. I hope.

Lars' new coat

Lars has a little obsession with chewing on zippers--to the extent that he breaks them & little pieces end up... disappearing, probably into his belly. Not so good. I mentioned to his godmother Lisa that it's been difficult to find winter coats without zippers & she promptly solved the problem by hiring someone to make this wonderful little coat for Lars! It's perfect & will last him probably two more winters. The sleeves roll up for now or down (as they were this morning) when it's cold & windy outside. And doesn't the boy just look cute as a button with the yellow & red toggles? We love it.

new car seat

Insurance bought us a special needs car seat, and a bunch of friends & family got together for Lars' birthday & bought another one that can stay securely installed in the van instead of getting unbuckled & rebuckled all the time traveling back & forth to school on the bus. What an incredible gift! Thank you sooo much, one & all.

eeg off

Happy, happy boy has a free head for the first time in six days. Our fabulous eagle-eyed Perkins dream team spotted what they think were one or two seizures & got them marked. Hopefully we'll have some information in a couple weeks. For now we're just feeling how wonderful it is to carry him without all the leads, head wrapping, backpack with computer, etc.

still EEG'in

Lars' eeg that started Friday is still on, the battery having been recharged at Children's hospital on Monday. Little guy is not necessarily too happy about having his head all wrapped up for going on six days now. Slept absolutely horribly Friday, Saturday & Sunday nights when I had him. Yikes was I exhausted. Sunday night I got a wopping 2 hours of sleep & that was interrupted 3 times. Really restless & then up at 1:30 a.m. Huh? He was with Andey last night & she reported more restlessness, but also more overall sleep.

A friend at school described him as "a cute little ali-baba today all wrapped up." He is cute, you gotta give him that. I've got some pictures I'll try to post soon of the roving eeg boy.

I mentioned that he had his first "normal" EEG. What that means is that the background rhythm of his brain waves has matured and normalized from something chaotic and irregular to something that's regular enough to fit within normal limits for his age. It doesn't mean he's not having seizures. What Lars' epileptologist wanted to know is whether what we see that we think are seizures--eyes roll to the side, maybe a hand moves, seems unresponsive--are actual clinical seizures or just neuro-events-Lars-checking-out events. We have been giving him diastat and sending him home from school, for example, when he has what qualifies as a 'cluster' of these kinds of seizures. We want to know whether they actually are or not. So they're leaving the EEG on longer in hopes that we catch one, can mark it by pushing the button, and then they can go back and check out the recording of that time.

It's a funny thing to wish for seizures, but it would be nice if he would have a couple of what we're thinking are seizures so we can check them out. He had a maybe-event at school yesterday.... Michelle is taking him back to Children's today after school to either get the battery recharged again, or to get the whole thing off.