clusters

Today Larsy had his second major seizure cluster in as many weeks, both at preschool. Last week was the first time he had to get diastat, which for Lars is prescribed for a seizure lasting longer than 3 minutes, or if he has 3 or more shorter seizures within a half-hour. Last week I left work and picked him up. This morning at school he had seven seizures, including four after the diastat, and Andey picked him up.

Last week his timing was excellent, as he was already scheduled to see his epileptologist the next morning, so we got a depakote (primary seizure med) level drawn. Doc decided to maintain depakote dose & watch him; today we decided to increase it from 9 capsules a day to 10 and see how he does with that.

Lars felt okay through the whole ordeal, and maintained his good spirits. He may have been buoyed, as I was, from the beautiful kayak ride he, Joa, Michelle & I took the night before--big beautiful lake, setting sun, peaceful & quiet. Lars just loves being in the boat. Oh, did I tell you? An anonymous friend (thank you eternally, anonymous) donated money for half a used kayak, and I sold my Martin acoustic-electric guitar & got the money for the other half & we now have a fabulous tandem kayak. Can scoot the seats back & forth in the boat & use it as a single, too. I'm so thrilled-- got totally hooked on kayaking this summer & this makes every body of water accessible. So exciting.