the evening has passed

Lars continues his pattern of napping, waking & being happy for about 20-30 minutes, then getting grumpy. We feed him 'cause he seems hungry. He happily eats for a while, especially cheerios, then he starts fussing, then he starts screaming & arching his back & bringing his knees up. He won't even think about taking a sip of water most of the time. We definitely can't get enough food into him to keep him going. He's lost four pounds, from 35 to 31 pounds.

We had lovely visits this evening from Denise


and from Julie, whose photo we didn't get, and from CarylBeth, who did a fantastic job putting Babyman to sleep.



He's so sweetly sleeping now.


A friend wrote that she would "...invite him on an out of body trip to the stars tonight. I'll incubate a dream together." I love that.

Someone asked what this has been like, and so I thought about it & my answer is that this whole ordeal hasn't really been that bad for us. It was more frightening for a while because there were so many unknowns. Now it's awful when Lars is in terrible pain, but it does pass. The docs feel fairly certain they've ruled out all the major life-threatening illnesses it could have been, so we're just slowly traveling down this path of discovering the source of the ongoing pain. We'll figure it out, and we'll move on. It's a nuisance, but it's not catastrophic by any means.